At the end of fall camp.

Update on the Boy and What's With All the Toys Comment Count

Seth December 11th, 2023 at 3:10 PM

This is not content, and not sponsored. It's just a personal and charitable note.

So as many of you know, my six-year-old was hospitalized for 4.5 weeks this past summer with Miller-Fisher (no relation) Syndrome, a type of Guillain-Barré, meaning his immune system decided to eat away at his nervous system. Five months later, he is doing GREAT—as in other than running kind of like Devin Mockobee you'd never know anything happened to him. We have a follow-up with neuro this Friday with nothing but good news and a full recovery in sight.

I bring it up now because a lot of people also asked what they could do to help. The answer is most of the heavy lifting was already done by the incredible nurses, doctors, and staff at Mott Children's Hospital. I've been wanting to do something to pass this gratitude along, and the best thing I could think of was to donate toys to Child Life Services at Mott. You can do this with a Michigan player (and get an autograph for your troubles), or just go on Amazon and send something off the list, choosing the Mott Community Relations address at checkout.

image

[Details at THE JUMP]

WHY CHILD LIFE SERVICES AT MOTT?

image

There are orgs with better Guess Who game, just sayin'

Child Life is an arm of the local children's hospital, which happens to be literally the best children's hospital, responsible for making the patients' and care-givers' lives better/tolerable while there. It's not all toys—one of the most important services we received was a specialist who helped prepare our daughter to come see her brother. There are orgs with greater need and more deserving people than people like me.

This one matters because it's ours. Michigan has the best children's hospital in the world because having it is a priority of the Michigan community. If luck's with you, you'll never need to avail yourself of it. But it's there, and it's wonderful, because we've all decided we want this, and have been doing so for a long time. Sometimes it pays out for Michigan—Mott fixed a clubbed foot back in the early 1980s, and years later the foot's owner came here, led Michigan to a national championship, and became the only defensive player to win the Heisman. Usually the payoff is more like our experience, where we went in with a big problem, came out with the best-case scenario, and have been trying to make up a life debt since.

If this isn't moving you, or this isn't your community, totally cool. You're going to be hearing more from us soon on the Let's Go Zak campaign by Zak Zinter and Trevor Keegan to benefit the ChadTough Defeat DIPG Foundation and the Hav a Sole Sneakers donation program. You can look up your local children's hospital and see if you can donate toys to them. Or if you're trying to get the biggest bang for your buck, Marlin Jackson's Fight for Life Foundation is a model youth program supported by a lot of MGoReaders, and every shelter and social services org (favorites: Mariner's Inn, Easter Seals/MORC) always need things like soap, shampoo, deodorant, towels, socks and especially new underwear.

WHY TOYS?

If you are asking, clearly you are not a kid. But yes, toys make a HUGE difference. Kids in the hospital are terrified, uncomfortable, and often battling delirium (this, we learned, is apparently as common as it is parentally traumatizing). Their parents are sleep-deprived and mental wrecks. And here's the kicker: morale is all-important for treatment and recovery.

I don't have to explain this to any parent, but a new toy hits a kid's brain like a 4-star commitment. But in a hospital setting they also have sneaky medicinal uses. A magnetic drawing board and a tablet helped my son communicate with us while on the ventilator. A crystal growing kit  helped visualize the idea of his nerves growing back. We used a plush doll (dressed in Michigan gear) for him to decorate, point to what parts of his body hurt (meaning the nerves were coming back online), and for the staff and us to demonstrate and communicate what was happening to him.

image

A pair of toy cars were a breakthrough for getting him to produce sounds. Child Life brought window markers for his sister to decorate his room with, and games to play with him. When he started to recover we got several sets of Legos to help him get his hands working again. His first steps were toward a bunch of dinosaurs that PT/OT taped around the room.

image

The daily trauma of a certain med was solved with a bag of toys he'd get to pick from at the end of every day he got the shit down. For the greater traumas, the ones best left unremembered, certain Frozen 2 Elsas had to be sacrificed, and were okay with this.

image

We thank her for her service. RIP.

THE DRIVE

Because Michigan's football players are who they are, they're already all over this. Blake Corum's toy drive for Detroit Rescue Mission had about 15,000 attendees bring well over 20,000 toys, which are going to be distributed to DRM and—because they got so many more than they thought they would—several other local organizations that serve children.

JJ McCarthy and others are hosting a follow-up signing/toy drive at M-Den this Saturday for Mott, and (father-to-be) Mike Sainristil will be at Zingerman's a week from today collecting toys and signing autographs.

For those of you who can't get to one of these, do as you would for the out-of-town niblings and order a thing from Amazon that ships directly to the hospital. To this end, Mott's Children's Services put together a massive Amazon wish list, as well as a simplified three-sheet PDF that explains what they're looking for and not, and a landing page if you want to understand what they do or donate money.

A FINAL, BELATED THANKS

It is no exaggeration to say this: Mott Children's Hospital saved my son's life. Had it not been for their care, competence, and teamwork at crucial junctures we could have had very different outcomes. There are neurologists, PICU nurses, nurse practitioners, physical therapists, a child life specialist, a music therapist, an assistant basketball coach, a 12th floor tooth fairy team, his team at school, family, friends and readers who were so important to us that it's hard not to bother them with tearful hugs when I see them about town. My gratitude to the MGoBlog community and the greater Michigan community is boundless. So is my gratitude to Brian, who pays me enough, and our insurance, who covered enough, that handling the resulting expenses turned out to be so manageable I get to use the "give money to someone elseeeee" tag to reply when people ask what they can do for us.

Comments

Lumpers

December 11th, 2023 at 6:32 PM ^

Thanks for sharing Seth, that is such wonderful news.  Here here to your son's health, for he's a jolly good fellow!  Just sent an Amazon gift card to the cause, this IS the Michigan Difference.

Happy Holidays!

Team 101

December 11th, 2023 at 6:53 PM ^

Seth, I'm glad all is going well for your son and that your Hanukkah is a happy one.  Your words on Child Life are right on the mark!  They do so much for the well being of kids stuck in the hospital and unlike the medical care, child life activities are not covered by insurance and they rely on the generosity and good will of supporters.

LittleVictor_Dad

December 11th, 2023 at 7:30 PM ^

Great news!  Great org. And great idea. Spent the holidays in Mott with my not quite 1 yr old (came off the vent Christmas morning 2007 - but that’s another story) and his 20 mo old sister (who was worried Santa wouldn’t find her at Med Inn). Child Life helped our whole family. Thanks for sharing. 

BlueDad2022

December 11th, 2023 at 7:31 PM ^

Thanks for sharing.   Luckily my sons were pretty healthy growing up but always stressful when they were hurt or sick so I’m sure it’s been a pretty tough go for your family.   Even though mine are both past needing a fake ID, you never quit worrying about them.  
 

Great to see he’s doing well!

The Blue Collar

December 11th, 2023 at 9:14 PM ^

Great to hear, sorry you had to go through this. 

I always watch the deals around this time of year and try to find something cheap I can buy a lot of in terms of toys for Toys for Tots or other toy drives.

I also recommend looking for stuff for teens/pre-teens and they are often under-served in this department.

Merry Christmas everyone.

Walkinman

December 11th, 2023 at 9:24 PM ^

Best Mgoblog post I have seen!  My daughter is a Child Life Specialist at Mott and I know how important their role is to families like yours.  Just like so many caregivers, they are there to help in the hardest times.  Grateful that your son is ok and that you are putting a spotlight on one of the most impactful areas of healthcare.  Thank you for sharing.

Seth

December 11th, 2023 at 9:36 PM ^

Please tell your daughter thank you.

I wonder if we met her? Emily was the one who put the orientation book together for my daughter that was so impactful. She had a whole plan for showing her the machines, what and who was in the room, and then asked "Do you want to see what your brother looks like" before showing her.

I forgot the name of the one who came up to Floor 11 our first day out of the PICU and made pink slime with him. He remembers the slime though. He used it for pain, squishing it in his hand when it got really bad.

Kori was the one I met a few times who was in charge of bringing the teams there. We had the basketball team visit when the boy was still on the ventilator but Kori let my daughter and me come down in his stead. And then we all got to come down for the volleyball and lacrosse teams three weeks later.

On the 2nd to last day on Floor 12 (PT/OT inpatient floor) we got a visit from a magician followed by music therapy. She was learning his favorite songs on the spot. We were all in tears.

The first or second day in the PICU Child Life also gave me a guitar (a Taylor!) that got me through the ordeal. I figured out how to play Brain Damage by Pink Floyd and strummed it constantly whenever I got a moment the whole time we were in the hospital. When I got home, I'd forgotten how to play it. But that Taylor and that song kept me tethered to reality, or perhaps was my one indulgence to psychosis so I could be present when needed.

Walkinman

December 12th, 2023 at 8:18 AM ^

Emily is my daughter’s roommate. She is a great young lady. My daughter works in emergency so does not do shifts on 11 and 12. They are in such an incredible profession. So many people don’t even know what a Child Life Specialist does.  Thankful you are shining a light on it. Mott is incredible. I will share this story with my daughter and Emily.  

UMForLife

December 11th, 2023 at 9:41 PM ^

Thank you Seth for sharing your personal story and glad to hear about your child.

My company and others I know look for places to support and I will be redirecting them to your wonderful post.

Proud of our players, Michigan community, you, Brian and this blog. Happy Holidays and Go Blue!

ruthmahner

December 11th, 2023 at 10:53 PM ^

What a story, Seth, and what a beautiful picture of your healthy children!  Thank you for the details, especially the ones that were difficult to write, and for the guidance on places to give.  This is, of course, the giving season, but I always want to find a place where my gifts will mean something and not just disappear into an "end of year" abyss.  As soon as I finish baking plum bread, I'll start looking at the wish lists!

 

Weird Harold

December 11th, 2023 at 11:54 PM ^

Fantastic news and so glad to hear about all of it Seth.  Very happy for your family.  People say only bad news drives eyeballs, but this is another example of the Michigan Difference!

KO Stradivarius

December 12th, 2023 at 12:03 AM ^

My daughter was born premature at Mott about 25 years ago.  We were lucky that she didn't have many problems, really.  But I'll never forget Mott Children's Hospital, and the reassurance that I felt being there.  I sent a gift from Amazon. 

Seth - I'm so glad that your son is feeling better! 

UMgradMSUdad

December 12th, 2023 at 6:58 AM ^

Seth, It is so good to see your son is doing well enough to be released from the hospital, and the toy program for young patients is not something I would have thought of without your post.

Hospital stays are confusing enough for adults; I can only imagine what it must be like for a child.

Yostal

December 12th, 2023 at 7:53 AM ^

Seth,

An excellent update AND excellent news.  Love that you're highlighting Child Life Services, as you laid out, they make such a big difference for the patients at Mott.

SammyBlue

December 12th, 2023 at 8:15 AM ^

This brought me to tears.  You are a good egg Seth Fisher    I love your work and enthusiasm.  I love when Brian tells you to stop talking.  I love your passion for good v evil

 

Thanks for sharing and prayers for your son and go blue 

Bray

December 12th, 2023 at 10:01 AM ^

That is great! So glad that your son is doing better. Spent a night with my 15-year old daughter, who had mono, at St. Louis Children's hospital earlier this fall. I am not sure how you did it. What a blessing it is to have healthy children. Something that shouldn't be taken for granted. 

Blue_2008

December 12th, 2023 at 10:21 AM ^

Thanks for sharing, Seth. So inspired and glad to hear your son is on his way to a full recovery. And thanks for spreading awareness of some great causes and some truly heroic people.

Gohokego

December 12th, 2023 at 11:39 AM ^

Emotionally exhausting.  I'm glad things are looking up.  Having kids I can't even imagine what you and your family went through. Onwards and upwards.  Go blue!

DrAwkward

December 12th, 2023 at 7:10 PM ^

Thank you for posting this heartfelt message.  I can get a little grinchy this time of year because of all of the greed and mindless materialism, but I love giving when my donation will actually be put to good use.

And I'm delighted that your son is doing so well.  He must be one tough kid to have persevered through such adversity.

1918SATC

December 12th, 2023 at 9:47 PM ^

Thank you for the gift suggestion. We just picked out a number of things on the list to go to Child Life Services at Mott.  Our Christmas gift for us.